Parent Liaisons, A FriendOn Your Journey
Let us connect you with one of our volunteer family liaisons and build an immediate supportive network of caregivers who “get it.”
Family Liaisons are parents just like you! The liaison program is comprised of parent caregivers whose children have CFC syndrome and have been diagnosed for at least two years.
These volunteers represent the wide range of the CFC community. They know about CFC International’s services and resources and can provide helpful information. CFC International may connect you with a family based on geographic area, age at diagnosis, current age of diagnosed child, or similarities in medical conditions.
You must register with CFC International to be connected with a CFC Family Liaison.
When you register, you may select that you would like to be connected with a Family Liaison. If you are not ready, that’s okay. You can come back here and ask to be connected to a liaison at any time.
For more details, you may email info@cfcsyndrome.org.