Welcome to our Parent Resource Hub—designed to provide support, education, and connection for individuals with cfc syndrome and their families, while furthering our mission to promote research and raise awareness.

CFC Syndrome Care Management Guidebook
CFC Syndrome Fact Sheet
Clinical Care Practice Parameters in CFC Syndrome

We’re always looking to grow our resource library to better support our families. If there’s a resource you’d like to see featured on our website, please let us know at info@cfcsyndrome.org.