Lillian’s Legacy Research Grant
The 2025-2026 Funding Cycle Has Closed
Next RFP available in Fall 2026
Lillian Hux
CFC International’s research grants have provided over $250,000 in CFC syndrome research. Our research fund is a tribute to the memory of Lillian Hux, who lost her life to seizure complications of CFC syndrome at the age of 13. The unwavering passion and dedication of her parents, Kevin and Glenda Hux, fueled the creation of one of CFC International’s most impactful initiatives. Their vision inspires hope for a future where no parent has to bear the heartache of losing a child to CFC syndrome. The fund continues to grow through the deep commitment of our donors who know how important research is to the future of treatments in CFC syndrome.
Past Recipients
Sattar Khoshkhoo, MD
Brigham and Women's Hospital
Dr. Khoshkhoo's work will focus on the mechanisms behind neural circuit dysfunction and hyper synchronization, striving to uncover insights that could lead to targeted therapies for the neuropsychiatric aspects of CFC syndrome, especially epilepsy.
Rene Pierpont, PhD
University of Minnesota, Department of Pediatrics
Research:
Clinical Characteristics of Patients with Cardiofaciocutaneous Syndrome
Daniel Vogt, PhD
University of Michigan
College of Human Medicine’s Department of Pediatrics and Human Development
Assessing bRaf genetic variants for distinct neurological symptoms
Daniel Kenney-Jung, MD
University of Minnesota, Department of Pediatrics (When Awarded)
Clinical Characteristics of Patients with Cardiofaciocutaneous Syndrome