New diagnosis of cfc syndrome
Welcome
We are truly glad you’re here!
Joining the CFC International community means you’re not alone. This is a compassionate and supportive space where you can connect with families who share similar journeys and experiences. We understand the challenges that come with CFC syndrome, and we’re here to provide valuable information, improve understanding of CFC syndrome for you and your community, support families through regional meetups, provide opportunities for funded research participation, and host lifechangin events like our CFC Family Medical Conferences and RASopathy Clinic CFC Syndrome Days.
Please know that you’re welcome to reach out to us anytime. Whether you have questions or want to share your family’s story, we are here to listen. We are parents too! Our staff is unique and that not only are we parents and caregivers, but our Executive Director, Tuesdi Dyer, and Program Manager, Ashley Genelin are also parents to children diagnosed with CFC syndrome.
We look forward to connecting with you soon. Your journey matters to us!
Next Steps
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Take the first step in receiving the support and resources needed to empower your family. We will add you to our email list and send you newsletters, updated information about CFC syndrome, and invitations to various events and conversations throughout your journey.
CLICK HERE FOR CONTACT REGISTRY -
Join other newly diagnosed parents and caregivers and learn about CFC syndrome, CFC International and how we can help you throughout this journey.
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These documents provide you with helpful information for parents, caregivers and educators.
-
Take the first step in receiving the support and resources needed to empower your family. We will add you to our email list and send you newsletters, updated information about CFC syndrome, and invitations to various events and conversations throughout your journey.
CLICK HERE FOR CONTACT REGISTRY -
Join other newly diagnosed parents and caregivers and learn about CFC syndrome, CFC International and how we can help you throughout this journey.
-
These documents provide you with helpful information for parents, caregivers and educators.