We are so glad you are here…

Being part of the CFC International community means you have a network of parents and caregivers who understand you and your journey. This is a warm and welcoming space where you can connect with other families, ask questions, and make new lifelong friends.

We know firsthand the ups and downs that come with CFC syndrome, and we’re here to share helpful information, raise awareness, and support you through:

• Multi-disciplinary Clinic Meets;

• Family Medical Conferences;

• Webinars;

• Support Groups (via Zoom and on Facebook);

• Research and Clinical Trial Recruitment;

• Family Medical Grants;

• Travel Scholarships;

• And More!

Remember, we’re just a message away! Whether you have questions or want to share your family’s story, we’re all ears. We’re parents too, and we genuinely care!

Take a moment to review the “Next Steps” below. You can join our registered parents and caregivers, voluntarily choose to connect with families in your area, download important documents, apply for our closed Facebook group*, and join our Citizen Patient Registry.

We can’t wait to get to know your family better. Your journey is important to us!

*You must be registered with CFC International to join the closed Facebook group “CFC Parents.”