Registration for our 12th CardioFacioCutaneous syndrome Family Medical Conference July 24-27, 2024 at the Hyatt Regency Grand Cypress Resort in Orlando, Florida, can be found here.  Check out the Registration Guide that provides all the information to answer all your conference-related questions!  Finally, visit Hyatt Regency Grand Cypress Resort to make your reservations.  Limited childcare will also be available.

The Gala on Friday night of the conference will celebrate our 25th year as an organization!  We look forward to a festive night of dining and dancing along with live and silent auctions.  The children's raffle items are always a big hit!  Please consider donating an auction item!  

SPONSORSHIPS Does your company, or a family/friend’s business support CardioFacioCutaneous syndrome? Conference sponsorship opportunities are available!  We are also seeking auction items. If your family or company you work for would like information, contact Troy Greisen at tgreisen@cfcsyndrome.org.  

We are also looking for volunteers! CLICK HERE TO JOIN THE 2024 CFC CONFERENCE PLANNING COMMITTEE!

SCHOLARSHIPS AVAILABLE for families with financial need. We are grateful to the Kohler Family for the Stephanie Kohler Scholarship Fund. Application is HERE:

https://docs.google.com/forms/d/e/1FAIpQLScjTcmFaVLeH0blL4AJthi6i2jAi9NXNYwlboKYIBWGI4w6lg/viewform

JOIN IN OUR CAUSE

CARDIO FACIO CUTANEOUS syndrome INTERNATIONAL IS A CHARITABLE ORGANIZATION SERVING CHILDREN WITH THIS RARE DISORDER THAT AFFECTS THE HEART, FACE, SKIN AND HAIR. CHILDREN WITH THIS CONDITION ALSO TYPICALLY HAVE INTELECTUAL/DEVELOPMENTAL DISABILITES RANGING MODERATE TO SEVERE, AND OFTEN OTHER PHYSICAL CHALLENGES. CFC INTERNATIONAL IS THE GLOBAL MOVEMENT SUPPORTING THESE INDIVIDUALS, THEIR FAMILIES, RESEARCH IN FINDING TREATMENT AND INTERVENTION, PROVIDING CRITICALLY NEEDED CARE, AND ADVANCING AWARENESS, EDUCATION & ADVOCACY ABOUT CFC syndrome.