Patient Webinars
Growth in CFC Syndrome
Tuesday, February 24, 2026
8:00 p.m. EST
Bradley S. Miller, MD, PhD is a Professor in the Department of Pediatrics at the University of Minnesota Medical School, where he serves as Division Director of Pediatric Endocrinology. He is also the Medical Director of the Discovery and Voyager Clinics at M Health Fairview Masonic Children’s Hospital. Dr. Miller’s work focuses on advancing clinical care, research, and education in pediatric endocrinology. Dr. Miller is also a valued member of the CFC International Medical Advisory Board!
Join us and learn about growth in CFC syndrome. Dr. Miller will describe common challenges related to growth within the diagnosis, and will answer your questions in a Q & A session following his presentation!
New Parent Orientation
Saturday, March 7, 2026
10:00 a.m. EST
Are you a parent or caregiver looking to learn more about CFC syndrome and the valuable resources available through CFC International? Join us for an informative and supportive session designed to connect you with the knowledge, tools and community you need. Join Tuesdi Dyer, CFRE, Executive Director, Pilar Magoulas, MS, CGC, and Ashley Genelin, Ed.S., Program Manager, to learn about CFC International, our Family Support Network and receive a genetic overview of CFC Syndrome. This is an opportunity to become initially acquainted with CFC International for new families, as well as an opportunity for returning members to reacquaint themselves with the comprehensive offerings of CFC International.
Pediatric to Adult Transition
Thursday, March 26, 2026
8:00 p.m. EST
Dr. Katie Irby is originally from Nebraska, where she completed most of her education and her family still resides. She completed her residency in Internal Medicine-Pediatrics at the University of Utah in Salt Lake City, where she cultivated her interest and skills in caring for patients with chronic conditions of childhood transitioning into adult care. She then spent a year in Houston at the Baylor College of Medicine - Transition Medicine clinic as the first fellow in the Developmental Medicine fellowship program, aimed to educate and equip providers with the knowledge and experience to be leaders in this growing field and care for patients with intellectual disability and medical complexity as adults. She is currently back in SLC, UT completing a fellowship in Hospice and Palliative Medicine with the goal of providing comprehensive pain and symptom management as well as care consistent with goals of care through the lifespan. She plans to work primarily with patients and families affected by chronic conditions of childhood as both children and adults.
REGISTER TO ATTEND
All webinars are virtual and are free for CFC families to attend. After CFC International receives your registration, they will send the Zoom link for the webinar. For questions contact info@cfcsyndrome.org. See you there!

