Patient Webinars
Past Recordings
Parents and caregivers can learn more about the conditions CFC syndrome and the valuable resources available through CFC International. Check back regularly for updates. Webinars occur every month and information about webinars is shared here and in our caregiver newsletter.
These sessions are designed to connect you with the knowledge, tools and community you need.
Newly Diagnosed Parent and Caregiver Orientation
September 17, 2026
3:00 p.m. - 4:30 p.m. EDT
This session will not be recorded.
You must register to attend.
CFC Syndrome and Mortality:
Insights from the Latest Research
Wednesday, September 23, 2026
7:00 p.m. ET
Join an important conversation about mortality in CFC syndrome and what current research can teach us about supporting individuals and families in our community.
We are honored to welcome Jacquelyn Schatzman Raposo, MS, CGC, Certified Genetic Counselor and Genetic Counseling Research Fellow at Baylor College of Medicine and Texas Children’s Hospital. She will be joined for Q&A by Pilar L. Magoulas, MS, CGC, Certified Genetic Counselor, Chief of the Division of Genetic Counseling and Associate Professor at Baylor College of Medicine, and CFC International Board President, who oversaw her work in this study.
Jacquelyn will discuss research that included surveying bereaved CFC families, medical records, and reviewing the published literature to better understand causes and contributors to mortality in CFC syndrome. The webinar will explore key findings, important takeaways, and recommendations for families.
This webinar will be recorded for those who are unable to attend live.
You must register to attend.
Open to families, caregivers, professionals, researchers, and others in the CFC community.