Patient Webinars
This panel discussion features a group of experienced parents and medical experts discussing the unique challenges and considerations surrounding puberty in females with CFC syndrome. Topics might include hormone development, menstrual management, hygiene support, medical changes, and how to advocate for appropriate care. This session offers practical tips, shared experiences, and compassionate guidance for caregivers navigating this important stage.
Tuesday, June 24, 2025
6:00 p.m. EST
FEmale puberty Panel
Transition to adulthood
Join us for an informative webinar with Les Rogers, Human Development Instructor, TRiO Advisor at Umpqua Community College, and father to an individual with CFC syndrome. Les will discuss key topics related to long-term planning and support for individuals with disabilities, including day support programs, employment options, Medicaid waivers, housing, benefits, and planning for the future when primary caregivers are no longer able to provide care. This session offers practical insights and guidance for families navigating these important decisions.
Tuesday, July 8, 2025
8:00 p.m. EST
REGISTER TO ATTEND
All webinars are virtual and are free for CFC families to attend. After CFC International receives your registration, they will send the Zoom link for the webinar. For questions contact info@cfcsyndrome.org. See you there!