Patient Webinars
Join us for an informative and empowering webinar with Morgan Jones, IEP trainer for the Mississippi Department of Education and a fellow CFC mom. Whether you’re just starting out on your special education journey or looking to better understand your child’s current services, this session is for you.
Morgan will walk us through the essentials of special education, including:
What services and supports may be available for your child
Your rights as a parent in the IEP process
How to prepare for and participate in IEP meetings
Common do’s and don’ts when navigating special education
What to expect in various school-based scenarios
Come ready to learn, ask questions, and gain confidence as you advocate for your child’s needs. You are not alone—and you don’t have to figure it all out on your own.
This webinar is free and open to all caregivers looking for clarity, support, and practical guidance on all things IEP-related.
Tuesday, September 16, 2025
7:00 p.m. EST
SPECIAL EDUCATION TELL ALL!
Are you new to the CFC community or recently received a diagnosis? You're not alone, and we're here to help.
Join Tuesdi Dyer, CFRE, Executive Director at CFC International,
Pilar Magoulas, MS, CGC – Chief of Genetic Counseling, Associate Professor at Baylor College of Medicine, Vice President of the CFC Board & Vice Chair of Research, and
Ashley Genelin, Ed.S., Program Manager at CFC International for an informative and welcoming session about CFC syndrome, the mission of CFC International, our Family Support Network, and more.
We’ll also leave plenty of time for your questions—because we know that stepping into this community often comes with both uncertainty and hope.
Saturday, September 27, 2025
10:00 a.m. EST
New Parent & Caregiver Orientation
Join us for an insightful webinar featuring Dr. Rene Pierpont, Pediatric Neuropsychologist and Assistant Professor of Pediatrics at the University of Minnesota, as she presents the findings from her recent study on behavioral patterns in individuals with CFC syndrome.
This session will offer an overview of the research, key takeaways for families and caregivers, and what these findings may mean for care and support strategies moving forward.
Dr. Pierpont brings a wealth of clinical and research experience in working with children with complex medical and neurodevelopmental needs. She is deeply committed to partnering with patient communities to improve outcomes and access to meaningful resources.
Following the presentation, there will be time for Q&A, so attendees can ask questions and engage directly with Dr. Pierpont.
This is a valuable opportunity for caregivers, educators, and professionals to gain a deeper understanding of behavior in CFC syndrome and how we can better support those affected.
Thursday, October 9, 2025
8:00 p.m. EST
Behavior in CFC Syndrome
REGISTER TO ATTEND
All webinars are virtual and are free for CFC families to attend. After CFC International receives your registration, they will send the Zoom link for the webinar. For questions contact info@cfcsyndrome.org. See you there!