About CFC International
What began as one parent’s vision to find children like her child three decades ago has evolved into a network of more than 1,200 families across the globe.
Who We Are
CFC International is a non-profit patient advocacy and research organization dedicated to improving the lives of all people impacted by CFC syndrome.
Founded in 1999…
Our mission is to improve the quality of life for individuals with CFC (Cardio-facio-cutaneous) syndrome and their families through support, research, awareness and education.
Our Vision is…
To advance understanding and treatment of CFC syndrome.
Core Methods
Outreach, education and information sharing.
Access to the latest information to enable accurate diagnosis and proper symptom treatment.
Registries of individuals with CFC syndrome.
Medical research and development of treatments.
A broad base of funding.
Sustainability, continuity, and growth.
Collaborative relationships with Rasopathy and rare disease organizations.
Our Programs
Family Medical Conferences
Research Grants
Citizen Patient Registry
Webinars
Support Groups
New Family Orientation
Family Mentorship (Family Liaisons)
Clinical Trial and Research Recruitment
Patient Emergency Micro Grants
Unstoppably Bold Day!