About CFC International
Who We Are
Founded in 1999…
Our mission is to improve the quality of life for individuals with CFC (Cardio-facio-cutaneous) Syndrome and their families through support, research, awareness and education.
Our Vision is…
To advance understanding and treatment of CFC syndrome.
We do this through…
Outreach, education and information sharing.
Access to the latest information to enable accurate diagnosis and proper symptom treatment.
Registries of individuals with CFC syndrome.
Medical research and development of treatments.
A broad base of funding.
Sustainability, continuity, and growth.
Collaborative relationships with Rasopathy and rare disease orgranizations.
Meet the Team
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Monet Goode
FOUNDER
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Emmett Marsh
DESIGN DIRECTOR
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Eleanor Parks
SUSTAINABILITY DIRECTOR
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Karl Holland
SALES MANAGER
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Jaya Dixon
MARKETING DIRECTOR
Our Mission
To improve the quality of life for individuals with Cardiofaciocutaneous Syndrome and their families through support, research, awareness and education.
Our Vision
To advance understanding and treatment of CFC syndrome.
Our core methods
To provide support as needed by people affected by CFC syndrome through outreach, education and information sharing.
To ensure that physicians have ready access to the latest information to enable accurate diagnosis and proper symptom treatment.
To maintain and expand a registry of individuals with CFC syndrome.
To foster and facilitate medical research on CFC syndrome including development of appropriate treatments.
To maintain and grow a broad base of funds needed to expand our mission and goals.
To provide sustainability of the organization through continuity and growth.
To support a collaborative relationship among the conditions of the RAS pathway.
