Family Liaisons are parents and CFC family members who serve as representatives of the CFC community in the region where they live. They act as a liaison between our families and CFC International. They are also a point of contact for families in their state or region for general questions, guidance and support.

Our parent volunteers in the Family Support Network Program are excited to share their experiences with CFC syndrome and to listen to yours as well! They are knowledgeable about CFC International’s services and resources, allowing them to provide you with valuable information. CFC International can also assist in connecting you with a family in your area. For more information, please email info@cfcsyndrome.org.

If you do not have a liaison in your state or region, you are invited to contact Ashley at agenelin@cfcsyndrome.org, and she will assist you in getting connected with local families.