Mission and Vision
To improve the quality of life through family support, research, and education
Advance understanding and treatment of CFC syndrome.
To provide support as needed by people affected by CFC syndrome through outreach, education and information sharing.
To ensure that physicians have ready access to the latest information to enable accurate diagnosis and proper symptom treatment.
To maintain a registry of CFC individuals.
To foster and facilitate research on CFC syndrome including development of appropriate treatments.
To maintain a broad base of funds needed to accomplish our mission and goals.
To provide sustainability of the organization through continuity and growth.
To support a collaborative relationship among the conditions of the RAS pathway.