In the Heart of the Journey, We Find Each Other — Bringing Families Affected by CFC syndrome Together to Share Strength, Stories, and Support.

Living as a family impacted by CFC syndrome can often feel isolating, regardless of your location. This conference provided a unique experience where families could discover community, support, and friendship. Attending the conference allowed for fellowship and opportunities to engage with other families and medical professionals.

The CFC syndrome Family Clinic at Cincinnati Children's Hospital's Rasopathy Clinic took place on March 20, 2025. We welcomed 20 families for two days of comprehensive clinic care from neurology and cardiology to gastroenterology and genetics. Following the clinic, families joined one another at the hotel for a pizza party!

In May 2025, CFC families from near and far came together for a joyful and unforgettable day at Morgan’s Wonderland in San Antonio, TX—the world’s first ultra-accessible theme park! From laughter-filled rides to meaningful conversations, this special gathering was a beautiful reminder of the power of connection, community, and celebration. Check out the photos to relive the fun and see the magic of CFC families coming together