Prenatal Diagnosis

Knowing early, what does it mean?

It means we are here for you as you prepare for the birth of your child.

Prenatal diagnosis of CFC Syndrome is relatively new, and knowing early may help you prepare for delivery and life with a child diagnosed with CFC Syndrome.

What you should know now…

We encourage all prenatally diagnosed parents to read our parent guidelines.

Read our Parent Guidelines

These guidelines will help you understand and prepare for the team of healthcare professionals you may need to provide a medically focused experience in the early days and weeks of your child’s life, as well as for the years ahead.

At CFC International, we believe it is important to follow the guidelines for delivery and neonatal care recommended by your current delivery and care team. Medical care at delivery is important and provides a safe delivery experience for you and your child.

Take a moment to review research on prenatal findings in CFC Syndrome.

explore these Prenatal Findings in CFC Syndrome

We are equipped with access to some of the best experts in the world on CFC Syndrome. If you’d like to speak to a genetic counselor about your child’s prenatal diagnosis of cfc syndrome, please contact info@cfcsyndrome.org.

The early days with you child…

We know that the first days of your child’s life will be busy, exciting, and even confusing. Please share the CFC Parent and Caregiver Guidelines with everyone on our medical and caregiving team.

Once your child has arrived, we encourage you to jump start your journey in the CFC Community by registering with us as Newly Diagnosed Family. You’ll have access to additional resources and an option to join our closed CFC Parent group on Facebook.