Please be patient as we transfer to a new website. If you need assistance, please email info@cfcsyndrome.org


Our Mission is to improve the quality of life for individuals with CFC Syndrome and their families through support, research, and education.

CFC International was founded in 1999 by parents of children with CFC syndrome. We are the leading International organization dedicated to provide support for persons, families, and caregivers impacted by a diagnosis of CFC syndrome. With more than 700 individuals diagnosed worldwide, we work to provide information on the most up-to-date care. We also work with our families to provide support groups and opportunities to convene while receiving the most recent education on this rare disorder.

Update:

CFC Syndrome
Regional Family Clinic at Cincinnati Children’s Hospital
Has Been Cancelled
Due to COVID-19

it is our intention to RESCHEDULE this event, so please Stay tuned for rescheduling information