Family Support groups
As a parent or caregiver, you can stay connected with our online community of families through on private Facebook Page: CFCParents
Our Facebook parent group is a private/closed group where families may share in challenges and successes in the care and treatment of their child with CFC Syndrome. Medical direction is not provided.
monthly support support groups
On 2nd Monday of every month and the 3rd Thursday of every month, the CFC International team hosts virtual one-hour support groups. These groups meet over the computer and by phone for interactive discussion on issues impacting their children with CFC Syndrome.
Support Sessions:
2nd Monday of each month @ 10 a.m. Eastern Time (US, New York)
3rd Thursday of each month @ 8 p.m. Eastern Time (US, New York)
To best protect our families and caregivers, we require that ALL families register here, before requesting to join our online private Facebook community or participate in monthly support group calls. For more information about either of these programs, please email info@cfcsyndrome.org.
As always, we encourage you and everyone you know to like us on Facebook!
Please note that the CFC Parent Facebook group and support sessions are CLOSED groups. Content is not visible to outsiders to ensure family privacy. Content may not be shared from the closed groups. The closed groups are places where families may discuss challenges, successes, or seek advice from other caregivers. Be mindful when recommending people to join this group. CFC International is not responsible for the topics or content discussed and cannot guarantee the accuracy of the content. You should always consult your doctor before starting or amending any medical treatment.
