For parents or legal guardians who have a child diagnosed with CFC Syndrome, we invite you to be part of our CFC International family community. By sharing your contact information, we send you information about support groups, social media pages specific to your area/region, and countries including Canada, Australia/New Zealand, UK and more, family meet-ups, research, clinics, conferences and fundraisers. You will also receive our organizational newsletter.

As a connected family, you may join our private CFC Parent Facebook group. Content in this group is not visible to outsiders to ensure family privacy. In this group, families discuss challenges or seek advice and share successes. We ask our families to be mindful when “inviting” people to join the group. All requests must be approved by our group administrator so that it remains a “safe place” for our families to share. We encourage you to follow and invite your community to follow CFC International on our public Facebook and Instagram pages. Content shared on any of these social media sites, as well as private groups, are third party discussions and are not considered medical treatment or diagnostic. CFC International is not responsible for the content discussed by members and cannot guarantee the accuracy. You should always consult your doctor before beginning or changing any medical treatment.

Confidentiality: All information you provide to CFC International will remain confidential. We will not sell or share your information. You may opt-out of receiving communication from CFC International at any time.