Aubree Dodd’s long walk
4-year-old with rare disorder finds help at the Permian Basin Rehab Center.
4-year-old with rare disorder finds help at the Permian Basin Rehab Center.
Deaf therapy dog provides unconditional love to sick, disabled in Oklahoma
Owner Billy Thomas takes his second therapy dog, Whiskey, to interact with clients at several Oklahoma City-area organizations dedicated to children and adults with disabilities and illnesses, including CFC Angel Amanda Holland.
Owner Billy Thomas takes his second therapy dog, Whiskey, to interact with clients at several Oklahoma City-area organizations dedicated to children and adults with disabilities and illnesses, including CFC Angel Amanda Holland.
Faces of Rare Disease: CFC Syndrome
There are only 300 documented cases in the world of people living with a condition called CFC syndrome. One-year-old Myli Miller of Lacassine has this rare disease, but does not let it take away her spirit and smile, even on her sickest days.
There are only 300 documented cases in the world of people living with a condition called CFC syndrome. One-year-old Myli Miller of Lacassine has this rare disease, but does not let it take away her spirit and smile, even on her sickest days.
Tess Mountain meets her hero Dwyane Wade
Thirteen-year-old Tess Mountain had the chance to meet her idol, Miami Heat guard Dwyane Wade, all thanks to a Facebook page. Mountain suffers from a rare genetic condition called Cardiofaciocutaneous (CFC) syndrome that affects the heart, facial features and skin, but her passion for the Miami Heat never falters.
Thirteen-year-old Tess Mountain had the chance to meet her idol, Miami Heat guard Dwyane Wade, all thanks to a Facebook page. Mountain suffers from a rare genetic condition called Cardiofaciocutaneous (CFC) syndrome that affects the heart, facial features and skin, but her passion for the Miami Heat never falters.
Michael’s Transition: One Student’s Journey to Success
Michael is a wonderful, kind, and engaging young man who loves to help others. Though he is a teenager, Michael has struggled to learn independent work skills, an issue that Elim’s CORE program was designed to address. Thanks to dedicated staff, families, and willing students, many students like Michael are learning independent work skills, and thriving in the process.
Michael is a wonderful, kind, and engaging young man who loves to help others. Though he is a teenager, Michael has struggled to learn independent work skills, an issue that Elim’s CORE program was designed to address. Thanks to dedicated staff, families, and willing students, many students like Michael are learning independent work skills, and thriving in the process.
Trapped in time
An article about the Wilds, a CFC faily from Wichita. “Six-year-old Owen Wild, who has a rare genetic disorder, will ‘always be a baby,’ his mother says.”
By Karen Shideler, The Wichita Eagle
An article about the Wilds, a CFC faily from Wichita. “Six-year-old Owen Wild, who has a rare genetic disorder, will ‘always be a baby,’ his mother says.”
By Karen Shideler, The Wichita Eagle
The Boy in the Moon
For 11 years, writer Ian Brown and his family have dealt with an unexpected presence – his son, Walker, born with a rare and complex genetic disorder, CFC, which makes life very disorderly indeed.
For 11 years, writer Ian Brown and his family have dealt with an unexpected presence – his son, Walker, born with a rare and complex genetic disorder, CFC, which makes life very disorderly indeed.
PBS Frontline: The Undertaking
The parents of two-yeard-old Anthony John Verrino, who was born with a rare genetic condition (CFC). They decided to share their story about their beloved son with others as a way to honor him — the “incredible little person” whom they were blessed to have.
The parents of two-yeard-old Anthony John Verrino, who was born with a rare genetic condition (CFC). They decided to share their story about their beloved son with others as a way to honor him — the “incredible little person” whom they were blessed to have.