Welcome

Welcome to the Cardio-Facio-Cutaneous (CFC) International website. If you are a newly diagnosed family, you are no longer alone in coping with CFC syndrome.

Newly diagnosed families may register by Clicking Here.

After you’ve registered, you may request to join our CFC Parents, private Facebook support group.

We are here for you!

Established in 1999, CFC International is an global network of parents and researchers. We share knowledge and experience, and provide emotional support. Additionally, we act as a clearinghouse of information on all aspects of CFC syndrome.

Please share this website and the resources contained on it with family, medical professionals, and school staff to help them better understand CFC syndrome. In our resources, you will find that there is a plan in place and guidelines to help your child’s medical and education team bring forth the best treatments.
If you are a physician considering a diagnosis of CFC syndrome or a layperson seeking information on these disorders, we can provide you with the most comprehensive information and support.

We rely on our families, caregivers, and numerous volunteers to provide assistance to move our great organization forward.  So, we are grateful you’re here!

Thank you for taking time to visit our website.

Thank you,

Tuesdi Dyer, CFRE
Executive Director
CFC Syndrome Mom