Connect With Us

For families/guardians with a CFC syndrome family member, we invite you to be part of our community. Join CFC International as we pursue our mission to improve the quality of life through family support, research, and education. By sharing your contact information, we promise to keep you posted about any research, meetings and fundraisers in your area. We will also add you to our newsletter listing if you would like.

Please note that the CFC International List Serve and Parent Facebook sites are CLOSED groups. Our content is not visible to outsiders to ensure family privacy. The intent is for families to discuss challenges they may face during their everyday lives and/or to seek advice and share successes. We ask our families to be mindful when recommending people to join the groups. The groups should remain a “safe place” for our families to share and discuss topics. Most of the content shared on these social media sites are third party discussions. CFC International is not responsible for the topics or content discussed and cannot guarantee the accuracy of the content. You should always consult the advice of your doctor before beginning any sort of medical treatment.

All information you provide to CFC International will remain confidential. We will not sell or share your information.