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CFC Intl Web

Caleb’s Story of Hope

Celebrating Caleb It was a little over 19 years ago. Two young kids were excited to be having a kid of their own; their first one. Alice and I walked into the room to get our first ultrasound. We were so excited. We would actually get to see our baby
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Kaci’s Story of Hope

Kaci Danielle Smith made her entrance into the world on December 19, 1994 at 6:00 a.m. Weighing 9 pounds 7 ounces, she was the biggest baby in the hospital. Although we didn’t know it then, that would be the last time she was the largest among her
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Lucian’s Story of Hope

Hello from New Zealand My husband and I with our sons Lucian & Arlo live in Dunedin, New Zealand and have had what we now know as a very similar journey to others with CFC. For three and a half years we had no definitive diagnosis, in fact we got
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Marcus’ Story of Hope

I am tremendously proud of my children. They are three rare, unique gems and I love their exceptional, distinct qualities. However, my son is the rarest of the three. A genetic mutation gave him a truly beautiful soul and a heart which is incapable o
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