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CFC International operates a private computer list serve for all registered families.  The CFC International list serve offers immediate distribution of a message to the entire CFC International community. These messages and questions are read and answered by fellow family members of CFC syndrome children and adults. While CFC International does not endorse opinions as medical advice, the list serve offers support and informed opinions by people who know this disease. If you are interested in joining this list serve please send a message to

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Cardiofaciocutaneous SyndromeCFC International Cardiofaciocutaneous Syndrome • 183 Brown Rd. • Vestal, NY 13850 • phone: 607-772-9666 • fax: 607-748-0409