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Michael's Transition: One Student's Journey to Success
Michael is a wonderful, kind, and engaging young man who loves to help others. Though he is a teenager, Michael has struggled to learn independent work skills, an issue that Elim's CORE program was designed to address. Thanks to dedicated staff, families, and willing students, many students like Michael are learning independent work skills, and thriving in the process.
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Trapped in time
An article about the Wilds, a CFC faily from Wichita. "Six-year-old Owen Wild, who has a rare genetic disorder, will 'always be a baby,' his mother says."
By Karen Shideler, The Wichita Eagle
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Vestal mom helps families worldwide
Brenda Conger organizes support group to help children who share the same rare syndrome.
By Valerie Zehl, Press & Sun Bulletin
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What matters? When families affected by a rare disorder meet, it’s powerfully clear . . .
An essay and photos by CFC Mom Jennifer Bishop covering her experiences at the 2009 CFC International Conference in San Francisco.
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The Rarest of Challenges
Burnaby mother Denise Nagy lives life with what she calls a big question mark - will her four-year-old son Ashton be OK?
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The Boy in the Moon
For 11 years, writer Ian Brown and his family have dealt with an unexpected presence - his son, Walker, born with a rare and
complex genetic disorder, CFC, which makes life very disorderly indeed.
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PBS Frontline: The Undertaking
The parents of two-yeard-old Anthony John Verrino, who was born with a rare genetic condition (CFC). They decided to share
their story about their beloved son with others as a way to honor him -- the "incredible little person" whom they were blessed
to have.
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"The Outlook" from
Alexander City, Alabama
May 3, 2003
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Little Maddy is all 'smiles and chuckles' despite her problems
By: Steve Baker
The Farnham Herald Series
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Discovering Jared
By Jamie Lampros
Ogden Standard-Examiner
Farmington parents find support as son faces rare challenge
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Family Mission
By Sharron Tregaskis
At CFC International’s Web site, www.cfcsyndrome.org,
the abbreviation stands not only for cardiofaciocutaneoussyndrome,
the name given to a rare medical condition, but also for Caring,
Facilitating and Connecting, the organization’s philosophy
for helping affected children and their families. That philosophy
refl ects the commitment and concern of its president, Brenda
Shaffer Conger ’78.
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ALEC's ADVENTURE
9-year-old embraces life as family deals with his rare speech
disorder
By Nancy Bowman
Dayton Daily News: Monday January 24, 2005
TIPP CITY | Even the mysteries of a rare genetic disorder that severely restrict
Alec Farmer's ability to speak couldn't stop the names of two special friends — Dandy
and Puff — from
quickly joining his limited vocabulary.
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the full Article
Ordeal for Arroyo girl leads to triumph
Genes involved in rare illness are discovered in
health breakthrough
by Nathan Welton
Published by The Tribune, San Luis Obispo, CA
An Arroyo Grande family has helped discover the genes that cause
one of the world's rarest genetic disorders.
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